Below we have compiled a list of related organizations, associations and resources. Pediatric and adult resources are grouped together.
- advance brain injury prevention, research, treatment and education and to improve the quality of life for all people affected by brain injury.
- National foundation dedicated to preventing head and spinal cord injuries in children
Hydrocephalus
- founded in 1973 by two families who lost children to brain tumors, ABTA is a global organization making major strides by funding brain tumor research and providing the information patients need to make educated decisions about their healthcare.
- provides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves.
- Stanford Children's Health
- information and resources for families facing the challenge of a child with a brain or spinal cord tumor.
- non-profit organization whose mission is to provide resources, information, and support to people whose lives are affected by brain tumor disease and to fund brain tumor research.
- non-profit funder of childhood brain tumor research. Programs include free educational information about brain tumors, college scholarships and charity events.
- dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease.
- works for children and adults affected by seizures through research, education, advocacy and service.
- dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses.
National Organization for Rare Diseases (NORD) - a patient advocacy organizations dedicated to individuals with rare diseases and the organizations that serve them. These sets of pages are dedicated specifically to Neurofibromatoses.
- Texas Children's Hospital
- includes articles, videos and 3D medical animations
- National foundation dedicated to preventing head and spinal cord injuries in children
- dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease.